Page 9 - Esther Kruitwagen-van Reenen
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Contents
Chapter 1 Introduction and thesis outline 9
Part 1: Quality of life and participation in adult patients with SMA
Chapter 2 Correlates of health related quality of life in adult patients with 19
spinal muscular atrophy
Chapter 3 Social participation of adult patients with spinal muscular atrophy: 33
Frequency, restrictions, satisfaction, and correlates
Part 2: Quality of life and participation in patients with ALS
Chapter 4 Associations between psychological factors and health-related 53
quality of life and global quality of life in patients with ALS: A
systematic review
Chapter 5 Associations between illness cognitions and health-related 101
quality of life in the first year after diagnosis of amyotrophic lateral
sclerosis
Chapter 6 Participation restrictions in ambulatory ALS patients: Physical and 117
psychological factors
Chapter 7 Participation and autonomy in the first 10 months after diagnosis 135
of ALS: A longitudinal study
Chapter 8 General discussion 153
Chapter 9 Samenvatting 167
Appendices Dankwoord 177
Curriculum vitae 180
Publications 181