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CONTENTS


            Introduction                                                             9
            Chapter 1      Introduction                                             11

            Genetic predisposition                                                  25
            Chapter 2      Infantile hypertrophic pyloric stenosis in patients with    27
                           esophageal atresia
            Chapter 3      Intrinsic cellular susceptibility to Barrett’s esophagus in adults    69
                           born with esophageal atresia


            Management and interventions                                           125
            Chapter 4      An international survey on anastomotic stricture management    127
                           after esophageal atresia repair: considerations and advisory
                           statements
            Chapter 5      The effect of intralesional steroid injections on esophageal    151
                           strictures and the child as whole: a case series
            Chapter 6      Intralesional steroid injections to prevent refractory strictures    167
                           in patients with esophageal atresia: study protocol for an
                           international, multicenter randomized controlled trial
                           (STEPS-EA trial)
            Chapter 7      Patient-driven healthcare recommendations for adults with    187
                           esophageal atresia and their families
            Chapter 8      Recommendations for endoscopic surveillance after esophageal    211
                           atresia repair in adults

            Quality of life                                                        229
            Chapter 9      Longitudinal health status and quality of life after esophageal    231
                           atresia repair
            Chapter 10     Patient-reported outcome measures and clinical outcomes in   257
                           children with foregut anomalies
            Chapter 11     Psychometric performance of a condition-specific quality of life    287
                           instrument for Dutch children born with esophageal atresia
            Chapter 12     Development and validation of a condition-specific quality of life    321
                           instrument for adults with esophageal atresia

            Discussion and summary                                                 367
            Chapter 13     General discussion                                      369
            Chapter 14     Summary                                                 393
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